Charity team’s night with the stars
PUBLISHED: 14:16 29 November 2013 | UPDATED: 14:16 29 November 2013
Two Reading women who helped found the UK’s favourite Lottery-funded health project appeared on BBC1 to collect their National Lottery Award at a glittering awards ceremony.
Mandy Aldwin, 37, and her mother Maggie were part of a team who established the Ichthyosis Support Group (ISG) in 1997. Mandy almost died from ichthyosis at birth, a rare skin condition which affects around one in 300,000 people.
The ISG received almost 5,000 public votes in this year’s search for the UK’s favourite Lottery-funded causes. They travelled to Pinewood Studios and mingled with the likes of Ricky Tomlinson, Rod Stewart and Jason Donovan during a ceremony hosted by TV star John Barrowman.
Last month Len Goodman made a surprise appearance at an ISG event to present Strictly Come Dancing fan Mandy with the trophy. The ISG also received a £2,000 cash prize.
Mandy continues to give thousands of hours of time voluntarily, when she is well herself, to help others with ichthyosis. She said: “I’d like to pass on huge thanks to everyone who voted for us and the National Lottery for supporting us. Ichthyosis is an extremely distressing condition for both the sufferer and their families and has a huge impact on people’s lives.”
The Ichthyosis Support Group (ISG) is the only registered charity in the UK supporting individuals and families affected by ichthyosis, a rare genetic condition affecting the skin. Sufferers have to follow a rigorous daily routine, applying thick creams to the whole of their body several times a day to prevent dryness, cracking and infections. It can become so severe that it breaks bones in tiny fingers and toes – and can be fatal for babies.